The CHI-RON Study: Using PCORnet® and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative
Lindsey Rudov, MS, Analyst III on the Health Services Research team at the Louisiana Public Health Institute (LPHI), is a researcher on this article, published in Medical Care. The study describes how a targeted recruitment methodology that combined PCORnet® infrastructure with patient engagement strategies increased participant diversity in the Congenital Heart Initiative registry compared with traditional self‑enrollment approaches, demonstrating the value of combining data‑driven recruitment tools with meaningful patient partnership in research.