Thought Leadership and Resources
PCORnet®: An Infrastructure Supporting Innovation in Clinical Study Design
Thomas Carton, PhD, MS, Chief Data and Strategy Officer at the Louisiana Public Health Institute (LPHI), is a researcher on this article, published in Medical Care. It describes how PCORnet’s standardized data network and governance framework enable efficient, large‑scale clinical research by linking data across health systems and supporting diverse studies that address real‑world health questions.
Patient Voices Leading Change A Call to Action for Careful, Kind, and Connected Patient-Partnered Research in PCORnet®
This article, published in Medical Care, was authored in part by REACHnet, LPHI’s clinical research network. REACHnet serves as LPHI’s clinical research network within PCORnet®, enabling efficient, large‑scale studies that integrate patient engagement and real‑world health data to address critical health questions.
The CHI-RON Study: Using PCORnet® and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative
Lindsey Rudov, MS, Analyst III on the Health Services Research team at the Louisiana Public Health Institute (LPHI), is a researcher on this article, published in Medical Care. The study describes how a targeted recruitment methodology that combined PCORnet® infrastructure with patient engagement strategies increased participant diversity in the Congenital Heart Initiative registry compared with traditional self‑enrollment approaches, demonstrating the value of combining data‑driven recruitment tools with meaningful patient partnership in research.
PCORnet®: 10 Years of Research Innovation
Thomas Carton, PhD, MS, Chief Data and Strategy Officer at the Louisiana Public Health Institute (LPHI), is a researcher on this article, published in Medical Care. The study summarizes a decade of achievements by PCORnet®, the national patient‑centered clinical research network, highlighting its growth, expanded patient reach, and contributions to large‑scale, real‑world health research.
Peripartum Telehealth Care Utilization During the COVID-19 Pandemic, by Hypertension Status, PCORnet®, 2018 to 2023
Thomas Carton, PhD, MS, Chief Data and Strategy Officer at the Louisiana Public Health Institute (LPHI), is a researcher on this article, published in Medical Care. The study examines patterns of telehealth use during pregnancy and the postpartum period using aggregated electronic health record data from PCORnet®, highlighting changes in care utilization and differences by hypertension status among pregnant women.
Racial and Ethnic Differences in COVID-19 Disease Severity Among US Adults in Health Systems Participating in PCORnet®: May 2020–October 2022
Thomas Carton, PhD, MS, Chief Data and Strategy Officer, and Bridget Simon-Friedt, PhD, MS, Population Health Scientist, both at the Louisiana Public Health Institute (LPHI), are researchers on this article, published in Medical Care. The study leveraged PCORnet® data from over 1.6 million adults to examine racial and ethnic differences in COVID‑19 disease severity.
Partnerships With Health Plans to Link Data From Electronic Health Records to Claims for Research Using PCORnet®
Thomas Carton, PhD, MS, Chief Data and Strategy Officer, and Beth Nauman, PhD, MPH, Senior Director of Health Services Research, both at the Louisiana Public Health Institute (LPHI), are researchers on this article, published in Medical Care. The study highlights how linking electronic health record and claims data strengthens research capacity within PCORnet® and supports more comprehensive, patient-centered research.
Characteristics of Pregnancy-Related Health Events Across Care Settings Nationwide in PCORnet®
Beth Nauman, PhD, MPH, Senior Director of Health Services Research at the Louisiana Public Health Institute (LPHI), is a researcher on this article, published in Medical Care. The study analyzes more than 1.1 million pregnancy outcomes across 72 health systems to better understand patterns of pregnancy-related health events nationwide.